Wales Electronic Cohort for Children


Acronym
WECC
Lead investigator
Professor Ronan Lyons, Swansea University
Background

There are 35,000 births in Wales per year, and data are available for the previous ten years. Routinely collected datasets are publicly funded and have already been incorporated into the Secure Anonymised Information Linkage (SAIL) databank based at Swansea University.

These datasets will be combined to establish an anonymised Wales-wide Electronic Cohort for Children (WECC). WECC will serve as the platform for future work in translating information into child population health policy.

Aims & objectives
To develop a research platform capable of improving children’s health through analysis of routinely collected data from within and outside the health service. To utilise the data that is routinely collected in Wales to answer specific questions about child health and wellbeing, with the aim of informing policy and practice in Wales, whilst also being internationally relevant.
Study design

Observational model: Cohort.

The WECC cohort includes children born:

  • ≥24 weeks gestation;
  • To Welsh resident mother at birth, or a child resident in Wales between 1990–2008 (identified from the Welsh Demographic Service).

Currently, WECC consists of 765 945 children (392,349 male, 373 596 female) born to 375,025 mothers. Of these, 140,708 children moved into Wales following birth.

WECC will be able to answer important social, economic and health policy questions. WECC will also act as a demonstration project, which will inform the development of e-cohorts to support translational research across the life course and disease spectrum.

Further information & publications
Start date
April 2009
End date
April 2012
Funders

National Institute for Social Care and Health Research (NISCHR)

Translational Health Research Platform Award; Medical Research Council (MRC)

Amount
£248,012
Trial register number
NCT01136681